Today is Margret's birthday.
She would be 43 today. On Monday, she'll be gone six years.
Grief fades into the background, and life takes on a new normal. I don't hurt the way I did when she was first gone. And yet, I still miss her.
Last night I was sitting on the porch watching the lightning play around and behind the clouds, and listening to the thunder. I was thinking about the last time I sat on the porch watching a thunderstorm with my daughters, snuggled together under a blanket, giggling and enjoying being close. I smiled.
Last month I went to the PHA Convention in Indianapolis with Merle. I
met several more internet friends face to face for the first time.
Margret would have had a marvelous time. She would have made friends with EVERYBODY, because that was Margret.
PHA has an early diagnosis campaign, and I plan to keep telling anyone who will listen about PH, just as Margret and I did for years. It's too late to help my daughter, but I want to get out the word about the benefits of early diagnosis so that no one else has to go through the decline she did before getting appropriate treatment.
Here's a link to the PHAssociation website:
http://phassociation.org/
and here's another, to Merle's PH Support Group pages, lots more good info:
http://www.clevelandareaph.com/
